"Citizens, your health data, genomics, and the future”
Haughton Thornley Patient Participation Group and Manor House Patient Participation Group arranged the following conference for all interested persons. The event was recorded and is available here
09.00 Welcome from the Mayor of High Peak and the
editor of The Glossop Chronicle,
09.10 – 09.25 Interlude 1 - "The Planet
and DNA”
09.30 - 09.50
Dr Richard Fitton "HOUSE OF
LORDS Report Genomic Medicine” -
09.50 - 10.10 Sheila Mills UK Biobank
10.10 - 10.30 Rob Anker "The
life cycle of records”
10.30 – 11.00 Discussion - health
records for citizens
Coffee 11.00 –
11.20
11.20 – 11.35 Interlude
2 "The Planet and the Holocene”
11.40 – 12.00 Julie Barnes –
"The genetic landscape of diabetes”
12.00 - 12.20 Public health
– "Resourcing diabetes and its’ future economic burden”
12.20 - 12.40 Julie Barnes
"Testing for diabetes”
12.40 - 13.00 Citizens
presenting their family histories
13.00 lunch
13.30 – 13.45 Interlude
3 "A Global health language - the International classification of diseases”
13.50 – 14.10 Glen Griffiths
"Health information interfaces for citizens”
14.10 – 14.30 Margaret
Rickson and Dr Amir Hannan - "Processing health data”
14.30 – 14.50 Yvonne Bennett
– "Handling my family’s health care and data”
14.50 – 15.10
Tea
15.10 – 15.30 Dr Amir Hannan
"Consent and a partnership of trust”
15.30 – 16.00 – Discussion -
citizens processing their own health and health records
16.00 – 16.15 interlude
4 "The planet, information, sustainability and the Future”
16.15 Richard
Fitton, GP "The future for global health records”
16.30 End
Julie Barnes spoke at the
conference along with patients, clinicians and managers to discuss some of the
critical issues we now face as individuals and people who can have access to
their data as well as their genomes and what this might mean for our families
and future generations and what this may mean for us and the sustainability of
the planet.
Please contact Dr Richard Fitton on richard.fitton1@btopenworld.com for
further details.
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